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tomkindlon
@tomkindlon@disabled.social95% of posts on #MyalgicEncephalomyelitis, #LongCovid or #chronicillness.
With ME/CFS 35 years, severely affected 29 years. Health has deteriorated post Covid (March 2022).
Irish ME/CFS Association* trustee 26 years. 26 publications in peer-reviewed journals.
MEpedia entry which has links to my social media accounts (among other things): https://me-pedia.org/wiki/Tom_Kindlon #ChronicFatigueSyndrome #MECFS #PwME #fedi22 *IrishMECFSAssociation@mastodon.ie
IrishMECFSAssociation
@IrishMECFSAssociation@mastodon.ieThe Irish Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Association – for Information, Support & Research. NB: Posts should not be considered advice. Registered Charity Number: 20100254 CHY 22039
#MEcfs #PwME Currently also sharing some items relating to #LongCovid given various research studies have found a significant percentage satisfy ME/CFS criteria
ahimsa_pdx
@ahimsa_pdx@disabled.socialVegetarian, book lover📚 Living with ME/CFS and Dysautonomia since 1990 ♿️ She/Her
Please use #AltText on images/GIFs❤️
Yes, I'd love to see a photo of your cat😻
Avatar photo: Old photo of my cat, tabby with white chest & paws. Banner photo: Trees in a park with green leaves.
Just my posts, no boosts = https://justmytoots.com/@ahimsa_pdx?public_only=true
#MEcfs #PwME #Dysautonomia #POTS #LongCovid #Disability #Accessibility
ImmedicableME
@ImmedicableME@mastodon.onlineFormer medical librarian now #Disabled by #MECFS, #Dysautonomia/#hyperPOTS, #MCAS, nonepileptic #Seizures, #HEDS, and more. Really, really overeducated for my current career as a couch surfer and bed hopper (just trying to make “bedridden” and “housebound” sound more exciting). Late-diagnosed #ActuallyAutistic. Social awkwardness is my copilot. A “really nice guy, for a girl.” Never knowingly unkind—it’s ok to let me know if something I post is problematic. #Lesbian. She/her. United States.
halcionandon
@halcionandon@disabled.socialI’m severely #disabled by #ChronicIllness.
I have #SevereME #AdrenalDisease #Hypothyroidism #HyperParathyroidism #Endometriosis #Migraine #POTS/ #Dysautonomia #ChronicPain & more, topped off with #LongCovid. Hi #NEISvoid
Interests now include not being #exhausted, in #pain, or rejected by doctors for being too complex a patient. (Know good #doctors #GPs in #Melbourne taking patients?)
Need help with #accommodation #NDIS #GP #carer/ #caregiver & navigating the system. LMK!
LLS
@LLS@wandering.shopScience fiction writer. Fiction editor. Book designer. Publisher. Sporadic blogger. Not as tough as I seem 🏳️🌈 she/her
#SFF #ScienceFiction #science #books #design #CSS #tech #healthcare #NoAI #culture #climate #racism #LGBTQ #justice #USpol et merde
support: https://ko-fi.com/lauras
was @/lauras on birdsite
autoperipatetikos
@autoperipatetikos@neurodifferent.meHoping to find something better than Twitter and to connect with others who have moved over.
Late diagnosed female autistic (at age 51 in 2017) and ADHD. Other health challenges still to be diagnosed. CFS. Trauma.
A bit messed up. Not well enough to work or even survive some days. Carer.
Most likely will be sharing updates focusing on my mental health among other random things.
I don't have a clue how this works here. Please be patient while I'm getting used to things.
robotistry
@robotistry@sciencemastodon.comNot "Rob". Not "Robby the Robot".
Day job - Roboticist
Chair, IEEE standards development working group P2817; Secretary, IEEE standards development working group P1872.1.1; Co-chair, IEEE-RAS VAS and PEBRAS technical committees.
Side gig - Researcher with the Patient-Led Research Collaborative (PLRC)
Interests include #LongCovid, verification of autonomous systems, and science of robotics.
et_alia
@et_alia@strangeobject.spaceavi description: a piece of digital art of a smiling, femme-presenting, bald, pale-skinned, blue eyed person. wearing a strappy pink coloured top, jeans, glasses, and sat in a wheelchair. art by @Cosmix
we are a mentally and physically disabled unemployable trans plural system
im my next life i intend to be born either as a sentient slime or a rock with googly eyes
criquaer
@criquaer@mstdn.socialHappy pantheistic #Quaker, despite being #disabled by & sufferer from #SevereME #MyalgicEncephalomyelitis. Always follow back #pwME. I sleep up to 22/24 & am brain-fogged for days/weeks. English, Scottish & Welsh per #genealogy. My surname is Scots & my forenames in Gælic mean young red wolf. Most of my life I have been #asexual. With #QueerTheory I started using the term #queer. Now I describe myself as queer #demisexual. #Demisexuality was coined in noughties. I am #political but non-partisan.
waysandbeing
@waysandbeing@mas.to🗽→🇮🇪→🏴 | Dancer-Choreographer / Designer-Creator / Stylist / Artist / Accessibility & Ecology Advocate / Curator / Creative Director / Writer ∴ Navigating multiple invisible chronic conditions {link below ⤵️ in 'ABOUT'} ∴ Cultivating empowerment, wellness, love, & peace via research, culture, & style ∴ Lover of tea, coffee, kindness, Nature, vintage & preloved gems ∴ Proud dilettante ∴ Delicate strength 💫💗💫 {all content (words, images, concepts) unless stated otherwise ©Maitreya Levanchild}
InayaShujaat
@InayaShujaat@paktodon.asiaExtremely outspoken #Muslim woman living in #Aotearoa (#NewZealand).
Suffer from: #Migraine, #Tourettes, #POTS, #OCD, #Fibromyalgia, #ChronicFatigue, #IBS.
Enjoy: #Crochet, #Knitting, #Cricut, #LoomBeading.
Believe: #PalestineWillBeFree, #IslamophobiaIsBigotry, #TransWomenAreWomen, #HumanRightsForAll, #ApartheidIsGenocide
andycarolan
@andycarolan@social.lolIllustrator and Graphic Designer | Vegan | He/Him | Interested in #design, #creativity, #illustration, #remoteworking, and #sustainability
Profile Picture by me. Header by me.
btschumy
@btschumy@mas.toAmateur astronomer; Astronomy educator; Zoologist; Weather buff; Mobile software developer; ME/CFS
• Co-author of "SkySafari" planetarium app.
• Latest app: "Our Galaxy". Shows the 3D locations of objects in and around our galaxy.
elmyra
@elmyra@wandering.shopRogue scholar, warrior poet; #trans, #bi, #ace, #queer af; #migrant; #disabled/#spoonie, #adhd; they/them.
I care (toot/boost) about #socialjustice, #disability, #mecfs, #adhd, #plants, #crafting, #videogames, #scifi, #popularculture, #transrights, #consent, #climatejustice, #fandom, #fanfiction.
The personal is political.
Profile pic alt: selfie of olive-skinned human with dark brown hair looking up skeptically at the camera.
Banner alt: double rainbow in dark grey sky framed by trees.
antdesros
@antdesros@jasette.facil.servicesIntérêt pour la philosophie, les sciences de la nature, les langues, l'histoire, l'informatique libre et les sciences sociales.
AndrewGiffordphotography
@AndrewGiffordphotography@mastodon.socialHello,
I'm using photography to help raise awareness about living with a long-term multi-system health condition ME/CFS, aka ME or Chronic Fatigue Syndrome.
You can view the project - work in progress - via: https://glass.photo/andrewgifford
I'm here to hang out, learn, make connections, share tid bits and photo-related things I've enjoyed.
Happy to receive DMs, provided polite etc.
Andrew
Bristol, UK
Born at: 335.42 ppm
#photography #documentaryphotography #MECFS #chronicfatiguesyndrome
brianvastag
@brianvastag@sciencemastodon.comArrowbearMoore
@ArrowbearMoore@toad.socialHusband, dad, brother, uncle, friend, retired NPS, off-grid, grow/build our own food/home/furniture, advocate for resource conservation/protection and cultural evolution. #MECFS caregiver, most ancestors indigenous to #Scotland #environment #climate #sustainability #solarpunk #democracy #NPS #nature #science #offgrid #offpiste #skiing #mountains #hiking #canoeing #rivers
roothflud
@roothflud@mastodon.iesocialist, pagan , pwme
fullfathomfive
@fullfathomfive@aus.socialAustralian with a chronic illness. Sharing things that catch my fancy from across the web. Disability advocacy, film, music, queer history, audiobooks, animals.
kimlockhartga
@kimlockhartga@beige.partyrusozoll
@rusozoll@layer8.spacebananamangodog
@bananamangodog@aus.socialPhilosopher attempting #permaculture design while existing with #MECFS #Fibromyalgia. Equity advocate. Anti-capitalist. Arch Linux user. Promoter of FOSS.
pathfinder
@pathfinder@cutie.city58 years old (still and possibly now forever, yep definitely forever, this is now a lie, but I'm sticking with it because this way lies my only chance for immortality) autistic and into animism, spiritualism, philosophy and everything that can help explain the meaning of life, the universe and everything, including the prospect that it might really be 42.
Male he/him. British.
#autism
#actuallyautistic
#neurodiversity
bhawthorne
@bhawthorne@infosec.exchangeLong Covid/PASC/CFS since Oct. 2022.
My brain is different. If there is a bright center to the neuroverse, I’m on the planet that it’s farthest from. Do not follow if you aren’t prepared for bearish and at times splenetic posts.
I don’t have strong gender or pronoun preferences. He or they or per is fine.
New English naturalist descended from privileged white European settlers, now living on Pocumtuck and Nipmuc land.
Anti-racist, anti-fascist, anti-bigot.
Repeal the 2nd Amendment to the Constitution of the USA.
Warning: I sometimes post full-length blog posts here.
Header pic: Coastal Plain Pond in SE Massachusetts.
Thumbnail pic: Me looking out the window and remembering.
AlwaysInFlannel
@AlwaysInFlannel@disabled.socialFormer librarian. Artist in hibernation. Still a #librarian in my soul. A few interests: #equality, #NEISvoid, #art, #music, #knitting when my hands let me, #PrisonReform, Evie the cat (RIP baby girl), and kindness.
Pronouns: she/her
Pic: Black and white photo of my face partially covered with my hand. One eye can be seen as I look at the camera. I have a buzz haircut and heavy black eye makeup.
Header: A squirrel sitting at open door of bright blue dumpster.
halcionandon
@halcionandon@aus.socialAnother T*****r immigrant. It’s nice here. Better profile pending. See intro: https://aus.social/@halcionandon/109312394494110821 Please be mindful that I’m energy limited & it takes a lot of effort to reply to posts, boost, ie I’m putting a lot of effort into our interactions. Feel special! I’ll likely forget to reply or take a while (weeks/months) if having a bad time. #Science #Writing #MMT #Auspol #MedicalResearch #Healthcare #NDIS #ChronicIllness #pwME #MECFS #LongCovid #Disabled #NEISVoid #Melbourne, #Australia
ehashman
@ehashman@cloudisland.nzInternational florespondent, 🇨🇦 settler south of the medicine line, exhausted tech worker. Tea aficionado. Amateur botanist, naturalist, and radio operator. Godmother of cloudisland.nz ☁️🏝️ אין אלע גאסן וווּ מען גייט... Fighting severe ME/CFS. ♿
Public alt of @ehashman
SteveClough
@SteveClough@metalhead.clubChristian Quaker, software developer, anarchist, Green, and many other things I am not very good at.
He/Him. Also respond to it/Oi/Shut up you idiot.
#Nobridge #Nothreads #Nofascists
Header image: Seascape sunset.
Avatar: A cat above a message that says "Schroedingers cat is " and then an image with the words "alive" and "dead" combined.
mlanger
@mlanger@mastodon.world#GreatLoop #boater • #jewelry #artist • #writer • #creator • commercial #helicopter & #drone #pilot • #traveler • amateur #photographer • #weather nerd • #independent #thinker
Refugee from the dead bird site with low tolerance for bullshit.
I try to maintain a #NoPoliticsZone.
My toots disappear after one year.
I want to follow interesting people who share stories and images from their own lives.
Original quality content rocks. Make some.
CazimodoCreative
@CazimodoCreative@universeodon.comMy name is Caz. I am into all things crafty, especially crochet, and I run a little part time crochet shop on Etsy. I am also a full time parrot slave and a bit of a techie.
#fedi22 tags: #parrots #birds #petsofmastodon #birdsofmastodon #crochet #crocheting #craft #toys #art #fibreart
oldperl
@oldperl@mastodon.onlineGerman web-developer, coding web-stuff since 2004.
#Eltmann #Hassberge #Unterfranken #Bayern
Developer https://conlite.org
Threema: https://threema.id/WKXX4A58
Wire: phpBO