DenisCOVIDinfoguy , to AusCOVID19 group
@DenisCOVIDinfoguy@aus.social avatar

Chinese study finds association between viral persistence and Long COVID.

"Overall, the results provide significant new evidence that viral persistence is associated with Long COVID and that the quantity of virus remaining in tissues is associated with the risk of developing Long COVID."

@auscovid19

Source: https://www.wsws.org/en/articles/2024/05/22/isjc-m22.html

hannu_ikonen , to Random stuff
@hannu_ikonen@zeroes.ca avatar

This week on Hannu Explains it All:

I'm happy to take on any/all comers if you're hearing from so-called medical professionals that new onset diabetes, cognitive impairment, aphasia, insomnia, etc. etc. is due to "the shutdowns in early 2020" that lasted anywhere from 0 months to 9 months max in some counties.

You can however access the data yourself:

https://www.zotero.org/apresj20/library

DenisCOVIDinfoguy , to AusCOVID19 group
@DenisCOVIDinfoguy@aus.social avatar

Tasmania: "A senior obstetrician and gynaecologist who caught COVID during Burnie’s infamous hospital outbreak in 2020 is fighting his employer over ongoing effects, some 4 years later."

@TasmaniaHealth @GuyBarnett @auscovid19

Source: https://www.themercury.com.au/truecrimeaustralia/police-courts-tasmania/senior-burnie-doctor-fights-department-after-2020-covid-infection/news-story/d17abf7e91097ab0f2d00bc80bde1718

The doctor, who has not been identified, is pursuing the Department of Health for compensation, claiming he has never been able to return to full practice after first developing long Covid, and then a secondary injury of “distress and anxiety”. According to a newly-published Tasmanian Civil and Administrative Tribunal decision, the doctor was diagnosed with contracting Covid at his workplace – the North West Regional Hospital – on April 13, 2020. The media reported widely at the time that the hospital, and its neighbouring private hospital, were closed down due a Covid outbreak believed to have arisen from passengers on the Ruby Princess cruise ship. The hospitals underwent a deep clean and were quarantined for about a month. However the obstetrician, who took two months off work when he was initially infected, developed long Covid with “ongoing symptoms”. Due to those long Covid effects, as the tribunal noted in his management plan, the obstetrician lost his accreditation to perform certain surgical procedures. Late last year, he met with the hospital’s executive director of medical services, Elizabeth Deards, in a bid to have these credentials reinstated – but was told he’d need to undergo a neurocognitive assessment first. During her meeting with the obstetrician and his wife in 2023, Dr Deards said he appeared agitated, had obvious hearing difficulties, was easily distracted, and that his “narrative was disorganised, disjointed and, at times, abstract or bizarre”.

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  • tomkindlon , to MECFS group
    @tomkindlon@disabled.social avatar

    Upcoming BBC Radio 4 programme:

    " #LongCovid : Mind Over Matter?"
    https://www.bbc.co.uk/programmes/m001zg5q
    20:00 May 21 UK time.

    I was among a number of people from the ME community that Rachel spoke to to get background information. I'm hopeful this will be good.

    A recording should be available later at the link I believe.

    #PwLC #MEcfs #CFS #PwME @longcovid @mecfs #MyalgicEncephalomyelitis #ChronicFatigueSyndrome

    ALT
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  • C19LAP , to Random stuff
    @C19LAP@mastodon.world avatar

    Bishof said, “As a patient advocate, I urge insurance providers to reassess their policies and embrace a more inclusive approach that recognizes the ongoing challenges faced by Long Covid patients. It’s imperative that we support and protect these individuals, not isolate them further.”

    https://clearhealthcosts.com/blog/2024/05/getting-a-new-life-insurance-policy-will-longcovid-be-a

    ahimsa_pdx , to MECFS group
    @ahimsa_pdx@disabled.social avatar

    From

    ": Celebrating An Impactful Campaign"

    https://www.meaction.net/2024/05/17/teachmetreatme-celebrating-an-impactful-campaign/

    "We are THRILLED to share the rolling successes of our 'Teach ME Treat ME' campaign with you, as we report back on the amazing medical education events that have taken place so far – with many more to come in the upcoming months!"

    Article has lots more details along with reports of other Millions Missing events! 😁

    1/2

    @mecfs

    ALT
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  • ahimsa_pdx OP ,
    @ahimsa_pdx@disabled.social avatar
    ALT
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  • ahimsa_pdx , to MECFS group
    @ahimsa_pdx@disabled.social avatar

    Here's the latest News in Brief from the Science for ME forum for week starting May 13:

    https://www.s4me.info/threads/news-in-brief-may-2024.38393/#post-533010/

    This two part news summary includes articles, videos, research, advocacy, coming events, and more

    @mecfs @longcovid

    yoboseiyo , to Random stuff
    @yoboseiyo@retro.pizza avatar

    hey! johns hopkins is doing a survey about long covid! but they're having trouble finding CONTROLS, so if you've managed to avoid covid (#novid ) they wanna hear from you!

    https://covid-long.com/

    i took it! took about 30mins, and they ask about your vaccinations, so you might wanna have your card handy because they wanna know how many, what brand, and when. go help them out! #covid #LongCovid #COVID19

    s4me_news Bot , to MECFS group
    @s4me_news@botsin.space avatar

    Science for ME: News in Brief
    13 - 19 May 2024

    This week's research articles, media items, advocacy and other news relating to and
    @mecfs

    https://www.s4me.info/threads/news-in-brief-may-2024.38393/#post-533011

    tomkindlon , to covid19 group
    @tomkindlon@disabled.social avatar

    (pay wall)
    "Parents of children with claim they have been accused of faking or exaggerating their child’s illness, leading to social services’ involvement and... court cases and the threat of the child’s removal from the home."

    https://inews.co.uk/news/parents-children-long-covid-accused-making-up-3034629

    @longcovid

    @covid19
    @novid

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  • tomkindlon OP ,
    @tomkindlon@disabled.social avatar

    2/

    The UK ME Association have posted some extracts:

    "Parents of children with accused of making it up: Doctors and parents say children are being threatened with being taken into care as medics struggle to diagnose their conditions and families are placed under suspicion"

    https://meassociation.org.uk/2024/05/parents-of-children-with-long-covid-accused-of-making-it-up/

    Hashtags:
    @longcovid
    @covid19

    justyourluck , to Random stuff
    @justyourluck@masto.ai avatar

    ONE BILLION

    1,000,000,000

    "By 2033, a billion people are expected to suffer from Long Covid - most of them in the economically active age groups."

    https://www.manager-magazin.de/lifestyle/long-covid-konferenz-wir-muessen-uns-endlich-eingestehen-wie-gewaltig-dieses-problem-ist-a-4389644b-1795-4acf-bccf-759d6dce1982

    The is STILL going on‼️

    sucks more than you can imagine‼️

    or as the WHO now says it spreads ‼️

    with or better & Stay Safe‼️ 😷🫶

    oldperl , to longcovid group German
    @oldperl@mastodon.online avatar

    👇☝️ @longcovid

    schaumburgernachrichten@schaumburg.social - Long Covid: Nehmen wir Betroffene nicht ernst genug? - Viele von Long Covid Betroffene fühlen sich nicht ernst genommen. Georg Schomerus forscht zur Stigmatisierung und sagt: Die Krankheit wird in der Tat missverstanden. Was es bedeuten kann, wenn selbst Ärztinnen und Ärzte die Symptome fehl­interpretieren. https://www.sn-online.de/gesundheit/long-covid-nehmen-wir-betroffene-nicht-ernst-genug-P3WNZKXRLNE4JOT6OVANSQ3M5I.html

    themaskerscomic , to Random stuff
    @themaskerscomic@forall.social avatar

    I think it is really important we speak out against this bill as it could be copy-catted in other states, and its just messed up, so I started an email campaign: TIME-SENSITIVE!: Join the email campaign to stop HB 237 from passing in NC House of Representatives! If passed, this bill will make it illegal to wear a mask in public even for medical reasons, more info at https://the-maskers-comic.yolasite.com/stophb237 We need to send these emails out ASAP!

    ahandvanish Bot , to Random stuff
    @ahandvanish@bird.makeup avatar

    I wasn't able to watch all presentations from the PolyBio Symposium but wanted to point out 2 highlights on my mind:

    First, a new trial from USCF - an IL-15 agonist, which (if I understand right) would be one of few immune stimulant trials:
    https://x.com/patientled/status/1791560415086068031 1/

    https://bird.makeup/@patientled/1791560415086068031

    tomkindlon , to covid19 group
    @tomkindlon@disabled.social avatar

    The evidence gap in England

    https://t.ly/UdlgN

    "Of 6405 participants with data on duration of COVID-19 symptoms and linkage to health records, 896 (14%) self-reported [LC] of any severity in longitudinal population based study surveys. Among these 896 participants, just 48 (5.4%; 95% CI 4.1–7.0) were identified as having [LC] related codes in EHRs"

    Hashtags:
    @longcovid


    @covid19

    tomkindlon , to covid19 group
    @tomkindlon@disabled.social avatar

    Work and vocational rehabilitation for people living with long covid

    https://www.bmj.com/content/385/bmj-2023-076508

    "For some people, disabling symptoms lead to complete inability to work. In less extreme cases, “work instability,” which is a mismatch between patients’ functional abilities and the demands of their work, can threaten employment if not addressed."

    Hashtags:
    @longcovid


    @covid19

    MEActNOW , to Random stuff
    @MEActNOW@mastodon.social avatar

    PolyBioRF Symposium - Timothy Henrich

    ⚠️⚠️ is a TISSUE BASED DISEASE, not blood.

    T Cell activation increased years after initial SARS-CoV-2 infection.

    Persistent double stranded SC2 RNA in colorectal tissue.

    tomkindlon , to covid19 group
    @tomkindlon@disabled.social avatar

    New:
    Assessment of the Impact of RNase in Patients With Severe Fatigue Related to Post-Acute Sequelae of Infection ( ): A Randomized Phase 2 Trial of RSLV-132

    Free abstract:
    https://academic.oup.com/cid/article-abstract/doi/10.1093/cid/ciae205/7668392

    Hashtags:
    @longcovid

    @covid19 @novid @auscovid19

    1/

    tomkindlon OP ,
    @tomkindlon@disabled.social avatar

    2/

    “We hypothesized that removal of SARS-CoV-2 viral RNA from latent reservoirs may improve inflammation, neuroinflammation, and fatigue associated with post-acute sequelae of SARS-CoV-2 infection (PASC).”

    Hashtags:

    @longcovid


    @covid19 @novid @auscovid19

    tomkindlon OP ,
    @tomkindlon@disabled.social avatar

    3/

    “CONCLUSIONS
    While fatigue was not statistically significantly improved at Day 71 [primary outcome measure], earlier timepoints revealed statistically significant improvement in fatigue and physician global assessment. The data suggest eliminating latent viral RNA by increasing serum RNase activity may improve fatigue in patients. Women may respond better to this approach than men. Future studies will aim to confirm these findings”

    @longcovid

    MEActNOW , to Random stuff
    @MEActNOW@mastodon.social avatar

    and
    https://polybio.org/spring-2024-symposium/

    More talks ahead - watch until 6:00 pm Eastern.

    tomkindlon , to covid19 group
    @tomkindlon@disabled.social avatar

    Small fibre neuropathy frequently underlies the painful syndrome

    https://journals.lww.com/pain/fulltext/9900/small_fibre_neuropathy_frequently_underlies_the.593.aspx

    "Clinical data, quantitative sensory testing, and skin biopsies were collected from 26 selected patients with painful long syndrome. (contd)”

    Hashtags:

    @longcovid

    @covid19

    1/

    tomkindlon OP ,
    @tomkindlon@disabled.social avatar

    2/
    “(Contd) We also examined 100 individuals with past COVID-19 infection, selecting 33 patients with painless long-COVID syndrome, characterized mainly by symptoms such as brain fog and fatigue, and 30 asymptomatic post–COVID-19 controls."


    @longcovid @covid19

    tomkindlon , to longcovid group
    @tomkindlon@disabled.social avatar

    Cardiopulmonary Exercise Testing in Children With : A Case-controlled Study

    https://t.ly/Wb1ps

    "Children with have a reduced VO2 peak […], abnormal cardiovascular efficiency (VO2/HR% pred), pathological VE/VCO slope […], and abnormally reduced slope of VO2 work" "48% of the LC patients had a suspicious phenotype for pulmonary hypertension."

    Hashtags:
    @longcovid

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