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adelinej

@adelinej@thecanadian.social

Franco-Canadienne au Canada depuis +20 ans. FSL teacher to adults, 2nd Y. Diploma Egyptology, Manchester. English is my 2nd language, I make mistakes. Very late realization being autistic at 49. Learning to deal with ableism because I’m invisible. Breast cancer behind me, 2024. Toot mainly in English.

Pour me lire en français adelinej@piaille.fr

elle/she

Pls read the pinned posts

I don’t always follow back, not enough energy. I have many interests.

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Ilovechai , to ActuallyAutistic group
@Ilovechai@sciences.social avatar

I don't have the spoons to explain why I feel my neurodivergence is making this worse, but I need feedback or insight from other ND people on a unique experience. This will be a long thread (added in replies) but I'm hopeful there will be a few kind readers who either relate or have something supportive to share.
Here goes:
1/
@actuallyautistic @actuallyaudhd


adelinej ,
@adelinej@thecanadian.social avatar

@CynAq I relate so much to what you have written. In the last few months I went through a cancer journey and everywhere I read/heard “your support system is going to help you“ assuming everyone has one, like everyone I met assured that I have a licence and so I can go to my appointments.

But I don’t have a support group in person, except for the amazing health professionals who took care of me. The only support group I have is here in the autistic community. ❤️

@Ilovechai @actuallyautistic

adelinej , to Random stuff
@adelinej@thecanadian.social avatar

Alt text by the author of the comic Teresa Scovil A six panel comic of Honeydew complaining about masking. The comic is titled "A Fitting Mask" and is made by Theresa Scovil. Panel 1: Honeydew looks tired as they say "I'm so tired of masking." Panel 2: A person comes up, looking confused, and asks "Why? Don't you want to fit in with neurotypicals?" Honeydew looks annoyed. Panel 3: Honeydew looks angry as they gesture to themself and says "No! I'd rather be myself all the time." The person looks shocked. Panel 4: Honeydew takes out their metaphorical mask, a grey smiling face, as they look away, annoyed, and says "But the kinds of people who think I should fit in punish me for being my autistic self." Panel 5: Honeydew secures their mask over their face as they say "I don't mask to fit in." Panel 6: Honeydew says "I mask for my own safety." The person looks sad.
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    adelinej , to Random stuff
    @adelinej@thecanadian.social avatar

    I have just watched the 1st episode of A Kind of Spark thanks to @PetitPas

    It’s a Irish British American Canadian series. In Canada I’m watching it on CBC Gem, in the UK it seems to be on the CBBC channel, for the others countries I don’t know.

    I like it because the 3 autistic sisters are played by autistic actors, use of the words autistic, masking, meltdown. etc. Shows sensory overload, etc., ignorance and bias.

    To watch it in Canada https://gem.cbc.ca/a-kind-of-spark

    adelinej OP ,
    @adelinej@thecanadian.social avatar

    Interview of Lola Blue playing the main character

    https://tresamagazine.com/2023/06/27/lola-blue/

    About the series and the crew

    https://lbbonline.com/news/autistic-women-lead-the-charge-in-ground-breaking-cbbc-series-a-kind-of-spark

    adelinej OP ,
    @adelinej@thecanadian.social avatar

    If you have an autistic loved one, please watch the show mentioned in the first toot if you can.

    If you are autistic, please tell me what you think of it. I know that it won’t talk to all of us, but I’m seeing so much of myself in the series even I have learned only at 49 that I was autistic.

    I know that the show is not perfect but for me it’s the first time that I’ve seen such an accurate representation of our experiences and suffering.

    @actuallyautistic

    adelinej OP ,
    @adelinej@thecanadian.social avatar

    @Bette @pathfinder Thank you! I have edited my original post to add the info from your comments.

    @actuallyautistic

    dave , to ActuallyAutistic group
    @dave@autisticnomad.social avatar

    @actuallyautistic Saw this at the pharmacy and picked it up... curious to see what it says.

    adelinej ,
    @adelinej@thecanadian.social avatar

    @dave @actuallyautistic I’m curious about the “treatments”.

    CultureDesk , (edited ) to Parenting
    @CultureDesk@flipboard.social avatar

    Many autistic children thrive on routine and predictability, which can make vacations challenging for them. Here's a story from USA Today with tips on how to plan a trip, choose an airline that provides accommodations for autistic children, and details on what to expect from an autism-certified resort.

    https://flip.it/dnzdjW

    @kkffoo and others highlighted to us that the puzzle piece originally used to illustrate this story is an offensive analogy to some autistic people. Here is an explanation as to why. The publication has now changed the image in response to this feedback. Thank you all.

    https://theabilitytoolbox.com/autism-puzzle-piece-alternative/

    adelinej ,
    @adelinej@thecanadian.social avatar

    @CultureDesk Thank you for listening autistic voices!

    @kkffoo

    adelinej , to Random stuff
    @adelinej@thecanadian.social avatar

    From @Autie-biographical Comics

    Alt text by the author

    A three panel comic of Honeydew being told they don't look autistic. The comic is titled "Complementary Look" and is made by Theresa Scovil. Panel 1: A person comes up to Honeydew and cheerfully says "You're autistic? Wow! You really don't look it!" Honeydew looks surprised. Panel 2: Honeydew looks annoyed as they say "That's not a compliment." The person looks confused and asks "What do you mean?" Panel 3: Honeydew explains "You make it sound like autism has a look, and that looking it is a bad thing." The person looks shocked and says "Oh."
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    • adelinej OP ,
    @adelinej@thecanadian.social avatar

    From @Autie-biographical Comics

    Alt text by the author

    A four panel comic of Honeydew explaining how they are qualified to educate about autism. The comic is titled "Lived Experience" and is made by Theresa Scovil. Panel 1: A person points to Honeydew and asks "What makes you think you can educate people about autism? Honeydew looks surprised. Panel 2: The person continues by saying "You're not a psychiatrist, a therapist or a clinician." Panel 3: Honeydew puts their hand on their chest and answers "No, but I am an autistic person with years of personal experience." Panel 4: Honeydew smiles and says "I didn't learn about autism from a classroom or textbooks. I learned about it from living it." The person smiles
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    • adelinej OP ,
    @adelinej@thecanadian.social avatar

    From @Autie-biographical Comics

    Alt text by the author

    A three panel comic of Honeydew responding to someone saying that everyone's a little bit autistic. The comic is titled "Gaily Autistic" and is made by Theresa Scovil. Panel 1: A person cheerfully says "Everyone's a little bit autistic." Honeydew looks taken aback. Panel 2: Honeydew smiles and asks "Oh! You mean like how everyone's a little bit gay?" The person looks annoyed and says "Um, I'm not gay." Panel 3: Honeydew excitedly yells "You're not autistic either!" The person looks shocked
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    • adelinej OP ,
    @adelinej@thecanadian.social avatar

    From @Autie-biographical Comics

    Alt text by the author

    A four panel comic of Honeydew talking to a person about identity language. The comic is titled "Language Barrier" and is made by Theresa Scovil. Panel 1: Honeydew happily says to a person "Most of the autistic community prefers being called autistic." The person smiles as they listen. Panel 2: The person responds "I'd prefer it if you'd call yourselves "people with autism" because it puts you before the autism." Honeydew looks surprised but continues smiling. Panel 3: Honeydew has a smug smile as they ask "Are you autistic?" The person's smile fades and says "Well, no but..." Panel 4: Honeydew happily shouts "Then shut up!" The person looks taken aback
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    • adelinej OP ,
    @adelinej@thecanadian.social avatar

    From @Autie-biographical Comics

    Alt text by the author

    A six panel comic of Honeydew discussing self-diagnosis. The comic is titled "A Little Minimized" and is made by Theresa Scovil. Panel 1: Honeydew says to a person "Autistic self-diagnosis is valid." The other person smiles. Panel 2: The person points up and cheerfully says "Agreed! After all, everyone's a little autistic!" Honeydew looks surprised. Panel 3: Honeydew puts and hand on their head in frustration and says "No, no, no. When I say that self-diagnosis is valid I'm not saying that everyone's a little autistic." The person looks surprised. Panel 4: Honeydew holds out their hand and says "I'm talking about people who've done extensive research and found that they display many autistic traits." The person listens quietly. Panel 5: Honeydew continues by saying "People who are seeking answers for why they are the way they are and finding them by listening to autistics tell their life stories." Panel 6: Honeydew looks annoyed as they say "The say "everyone's a little autistic" just minimizes the experiences of all autistic people, diagnosed or not." The person looks sad
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    wakehamAMR , to Random stuff
    @wakehamAMR@mastodon.social avatar

    Trying to make sense of my identity and personal history in reference to my late dx of ASD is, exhausting.

    My assessment is coming up in early May. Early indications suggest being medicated will be life changing.

    Anyone know of any decent adult support groups?

    adelinej ,
    @adelinej@thecanadian.social avatar

    @wakehamAMR It’s a good suggestion. Welcome to the community. 😊

    adelinej ,
    @adelinej@thecanadian.social avatar

    @wakehamAMR I forgot to mention the @actuallyautistic , not sure if you are aware of it.

    adelinej , to ActuallyAutistic group
    @adelinej@thecanadian.social avatar

    I have a question for AUTISTIC parents homeschooling their children.

    Do you have any neurodivergent affirming ressources about PDA and homeschooling of teenagers?

    It's for an autistic friend, she lives in France (I'm in Canada), she's homeschooling her 3 children for years now and she's struggling a with her 12 years old boy. Thank you.

    @actuallyautistic

    adelinej , to ActuallyAutistic group
    @adelinej@thecanadian.social avatar

    Just came across a very interesting thread about vocabulary in which I learned a new meaning for the 1st choice ⬇️ , in brackets.

    So, I’m curious now @actuallyautistic @actuallyadhd and others that I’m not aware about, how do you identify yourself?

    I’m talking about personal preference, not how others could identify you. For example, I don’t like being included in one of choices below, because for me it’s a word that minimizes and dismisses my reality.

    autism101 , to ActuallyAutistic group
    @autism101@mstdn.social avatar

    If you learned you were autistic later in life, how did that affect you? Please explain if comfortable. @actuallyautistic

    adelinej ,
    @adelinej@thecanadian.social avatar

    @writeblankspace @autism101 @actuallyautistic

    I’m curious what makes you decide you are not? Because there are so many different and unique ways to be autistic. 😊

    adelinej ,
    @adelinej@thecanadian.social avatar

    @autism101 @actuallyautistic Clarity and relief to finally know! I was 49 and it explained, and still explaining so many things at 51.

    adelinej , to Random stuff
    @adelinej@thecanadian.social avatar

    “Why we oppose Autism $peaks” by “Autistics for Autistics Ontario A4A, Canada’s national autistic self-advocacy organization. We are an international affiliate of the Autistic Self Advocacy Network (ASAN).”

    https://a4aontario.com/wp-content/uploads/2020/05/Why-We-Oppose-Autism-Speaks.pdf

    catswhocode , to ActuallyAutistic group
    @catswhocode@mastodon.art avatar

    @actuallyautistic is it weird that I keep wondering if I'm autistic? I think it's because I haven't had a formal diagnosis, but I have many of the traits and I also think that my mother, sister, and possibly father are autistic :bunhdthinking:

    adelinej ,
    @adelinej@thecanadian.social avatar

    @catswhocode @actuallyautistic

    Not weird at all! Imposter syndrome is very common in the community. I don’t have a formal diagnosis because I can’t afford it and it won’t help me for anything. Self identification and/or community identification are enough for me. 😁

    adelinej , to Random stuff
    @adelinej@thecanadian.social avatar

    Autism is not a trend by Emilie Leyes

    “More folks are getting accurately diagnosed and autistic people finally have a platform to share their experiences. If you find yourself feeling uncomfortable with more & more people talking about their autism online maybe you should instead reflect upon why it bothers you that autistic folks are taking up space more publicly”

    https://www.tiktok.com/@emilieleyes.hypnosis/video/7317687611928235307

    onecreativecat , to ActuallyAutistic group
    @onecreativecat@mastodon.art avatar

    What helps you to recover from an autistic burnout?
    Recommendations welcome...
    @actuallyautistic

    adelinej ,
    @adelinej@thecanadian.social avatar

    @onecreativecat @actuallyautistic The author is autistic:

    https://www.dralicenicholls.com/how-to-get-out-of-autistic-burnout/

    I like the free tracker checklist symptoms.

    (And yes, I know it is so easier said than done to recover or get out from an autistic burnout especially with children).

    AnAutieAtUni , to ActuallyAutistic group
    @AnAutieAtUni@neurodifferent.me avatar

    Anyone know of any books that are about being an older person (50 / 60 / 70 years old and above)?

    Preferably written by an autistic author.

    (Non-fiction)

    @actuallyautistic

    adelinej ,
    @adelinej@thecanadian.social avatar

    @CuriousMagpie @AnAutieAtUni @actuallyautistic

    I strongly recommend that one, it's the only one existing I think for now?

    Older Autistic Adults: In Their Own Words: The Lost Generation

    Wake PhD, Wilma; Endlich, Eric; Lagos, Robert S.

    adelinej ,
    @adelinej@thecanadian.social avatar

    @AnAutieAtUni @actuallyautistic

    There is also this video

    “Autism and Aspergers in Older Autistic Adults (60+ Years Old)”

    https://youtu.be/eoiEZ3g5MlI?si=OKuyF0XxA3zg3Sor

    onecreativecat , to ActuallyAutistic group
    @onecreativecat@mastodon.art avatar

    Teen2 discovered this and... we are miffed!
    https://www.training2care.com/autism-reality-experience.htm
    @actuallyautistic

    adelinej ,
    @adelinej@thecanadian.social avatar

    @onecreativecat 990 livres! 😱 J’ai converti dans ma monnaie et c’est le prix d’un AR Montréal/Paris, je peux le faire pour beaucoup moins cher. 😂 Je connaissais le casque de réalité virtuelle mais pas une fin de semaine complète! Je serai curieuse d’essayer?

    @niamhgarvey Did you know about that? “The Autism Reality Experience can be delivered anywhere in England, Ireland, Scotland or Wales via our 9 mobile simulators which ensures the integrity of the course with a very controlled environment.”

    adelinej ,
    @adelinej@thecanadian.social avatar

    @nddev @niamhgarvey @onecreativecat

    I would like so much to try it.

    What bothers me about it it’s as usual, a claim about Autism like there was only way to be autistic. But we know that even we share common traits our sensory processing difficulties are probably unique. And that’s missing in their description.

    adelinej ,
    @adelinej@thecanadian.social avatar

    @niamhgarvey @nddev @onecreativecat But from my perspective our sensory issues are usually unknown unlike our communication struggles.

    adelinej ,
    @adelinej@thecanadian.social avatar

    @wakame @nddev @niamhgarvey @onecreativecat @actuallyautistic

    For me I’m dazzle by bright light, I get nauseous with smells, and for the sound surprisingly usually I can filter/ignore it at the beginning by making my own “white noise” (if that makes sense) but it becomes quickly like having a headache and having brain fog. And I can’t really remember how it felt before knowing that I’m autistic (2 years ago) because I had no idea about sensory overload.

    onecreativecat , to ActuallyAutistic group
    @onecreativecat@mastodon.art avatar

    Oooh, interesting!
    I was watching a neuroscientist's talk about stress and he mentionned a previous episode in which he explained that closing your eyes (or not looking your interlocutor in the eyes) meant you were listening better.
    It really speaks to me as

    Now I want to know more!
    Here is the episode on stress:
    https://inv.nadeko.net/watch?v=ntfcfJ28eiU

    @actuallyautistic

    adelinej ,
    @adelinej@thecanadian.social avatar

    @onecreativecat @actuallyautistic This is what I do when I watch TV or also at the theatre when it becomes to hard to focus and it helps me to understand better using less energy.

    Susan60 , to ActuallyAutistic group
    @Susan60@aus.social avatar

    I can sometimes be slow to notice the elephant in the room & the eggshells on the floor (the problem that everyone carefully denies and manages so as not to upset anyone), but once I do notice, I want to confront and solve it.

    The problem in this instance is my MIL’s insistence that she & FIL continue to live in a house too large to manage on an acre of rambling garden in an isolated location at the top of a narrow windy road.

    Of course solving such a thing is not always possible, & if I’m not the main person affected, the person doing their best to support & manage the situation, it’s not my problem. Attempting to solve it might just make the situation worse for that person & leave others feeling judged & hurt.

    It’s a boundary issue, & one I struggle with.

    @actuallyautistic

    adelinej ,
    @adelinej@thecanadian.social avatar

    @niamhgarvey @Susan60 @EVDHmn @sister_ratched @actuallyautistic

    My MIL and FIL decided to buy a few years ago the apartment where they are living for 40 years. For now they can go up and down the stairs, they are in their 70s, but it’s the 4th (European) floor with no elevator. I’m hoping that they are still going to be able to do it for many years!

    Sci_Fi_FanGirl , to ActuallyAutistic group German
    @Sci_Fi_FanGirl@hessen.social avatar

    Dear fellow @actuallyautistic people,

    Can you relate? Sometimes there are upcoming events and I know they'll overwhelm me completely. I'd like to avoid them, but sometimes I don't dare to ask because I don't want to be the person that always asks for a special treatment (German: Extrawurst). I'll complain all the way, but I don't opt out.

    I know I have to work on this. It's not about a solution.

    Is it internalized ableism? Camouflaging? People pleasing? Insufficient coping at the event?

    adelinej ,
    @adelinej@thecanadian.social avatar

    @Sci_Fi_FanGirl @actuallyautistic Ableism and masking in my opinion.

    And I don’t force myself anymore. I asked if accommodations are possible and it’s always no, so now I stay home.

    adelinej ,
    @adelinej@thecanadian.social avatar

    @Sci_Fi_FanGirl @actuallyautistic

    Being able to attend remotely for example as I don’t drive, but everyone assumes that I do, or that I can walk 10 minutes to go at the bus stop, and the bus network in my town is awful since the pandemic or that I have friends who can drive me. And, it feels safer to stay home as I just had a breast cancer and so little people masks.

    I made the choice of loneliness trying to protect myself from the ableism of the society with 0 support from it.

    adelinej ,
    @adelinej@thecanadian.social avatar

    @aevole What do you think would help you to accept? I know it’s a hard question. 😊

    @Sci_Fi_FanGirl @actuallyautistic

    mycelium , to actuallyadhd group
    @mycelium@blorbo.social avatar

    What are good questions to ask a potential therapist during the first meeting to make sure they are competent?
    @actuallyadhd @actuallyautistic

    adelinej ,
    @adelinej@thecanadian.social avatar

    @mycelium @actuallyadhd It depends on what you are looking for? Also do you identify being publicly being autistic and/or ADHD?

    I get a new one recently and I asked her what were her views about autism and if she was comfortable with neurodiversity. (I have filled the intake form online in which I mentioned being autistic).

    obrerx , to Random stuff
    @obrerx@neurodifferent.me avatar

    @actuallyautistic

    I've been seeing an increase in discussions (within the autistic community on another social media platform) about whether the term "disorder" is a fitting and acceptable descriptor of .

    What do you think, my fellow autistics? Do you have a disorder?

    adelinej ,
    @adelinej@thecanadian.social avatar

    @obrerx @actuallyautistic No, I’m not a disorder neither in English or French (disorder = trouble). In my birth country it’s Troubles du spectre autistique or TSA (ASD) so Autism Spectrum DisorderS

    (I chose to identify myself as autistic but my choice is not respected and people keep using this term when answering to me, but I’m disgressing).

    adelinej , to Random stuff
    @adelinej@thecanadian.social avatar

    Dear how do you stop, if you can do it, thinking and/or playing again and again in your head the conversations you had wondering what you should have said or not? What did this answer or question means? Because it’s exhausting. I’m not sure if it’s only an autistic thing? Question also for (being both)

    Susan60 , to ActuallyAutistic group
    @Susan60@aus.social avatar

    I was going to post this as a response to someone else’s post, but realised it wasn’t really relevant to their point.

    Years ago, when doing my teacher training, we had a guest speaker come & talk to us about our role as teacher when dealing with sexual diversity etc. He was a very conventional looking young white man.

    It was a seminar type presentation, with discussion along the way. As time went on, he slowly removed his “straight” mask, to show how many students can & do present as heteronormative until if & when they’re ready to come out.

    I wonder how this would work for autistic advocates who can mask effectively, in small group presentations? Masking as in making eye contact, smiling, a self effacing introduction etc. And then, “This is how I can present when I feel the need. This is how I present when I feel safe or give up caring.” Followed by an explanation of the impact that masking has, the fact that many autistic people can’t mask, the fact that we shouldn’t need to mask etc as well as general autism education.

    Of course this shouldn’t be necessary & it wouldn’t be in an ideal world.
    We could make comparisons with women who have to play by the men’s rules in business & politics, the people of colour &/or members of other different ethnic/religious groups who try to “assimilate” to get ahead, & how many struggle to do so, feel like traitors to themselves & their peers, get sick of &/or struggle with pretending to be someone other than they really are. Masking autism is not the same, & this would need to be explained, but I think many people would relate to some of the similarities & the feelings involved.

    There will always be some people who refuse to learn, who insist on a negative approach as part of their strategy to prop up their own ego. And it’s not them whom I would bother trying to convince. It’s the more reasonable but ignorant people who are open to learning that I think would be worth targeting.

    @actuallyautistic

    adelinej ,
    @adelinej@thecanadian.social avatar

    @Autistrain @Susan60 @actuallyautistic

    This is why I share mine bc my burnout left me so damaged by not knowing that I was autistic before 49, two years ago. I chose since to unmask in some situations, usually when people don’t know me from before. And I know that I’m lucky to be able to unmask sometimes, because for so many of us it’s impossible for safety reasons. The burnout broke me but at the same time it allowed me to have a psychiatrist to tell me “nobody ever mentioned autism to you”.

    Autistrain , to neurodiversity group
    @Autistrain@neurodifferent.me avatar

    I saw that a study says that don't like going outside in nature. Well, nature is a must for our mental health! I love the botanical garden. It provides good visual stimming.

    The other point is that I hike quite a lot and being in nature is vital for my anxiety.

    It's another good example of how we are misunderstood. It's another example of how we are seen as a deficit. It's totally dehumanizing us. We are human with human needs. It's not because somes don't understand our cognition that we aren't fully human.

    @actuallyautistic @neurodiversity

    adelinej ,
    @adelinej@thecanadian.social avatar

    @pathfinder @Autistrain @actuallyautistic

    Again a BS study! I need so much to be in nature to help me to regulate, to help me to feel better, etc. And I know that I’m not the only one!

    adelinej , to Random stuff
    @adelinej@thecanadian.social avatar

    ONLY (self/professionally dx or wondering)

    Do you do something special for New Year’s? Does it mean something for you? For so many years I didn’t understand why I was so little eager for this celebration but I guess now it’s because I’m autistic and for me it’s just a day like another. What about you?

    adelinej OP ,
    @adelinej@thecanadian.social avatar

    @pathfinder And I guess that it’s going to be a very busy shift?

    adelinej OP ,
    @adelinej@thecanadian.social avatar

    @pathfinder I wish you a safe and not too exhausting shift and a resting and well deserved day after it. ❤️

    AutisticAdam , to ActuallyAutistic group
    @AutisticAdam@autistics.life avatar

    Step right up folks but please bare in mind that she thinks food causes ADHD as well.

    @actuallyautistic

    adelinej ,
    @adelinej@thecanadian.social avatar

    @sentient_water @AutisticAdam @actuallyautistic

    There are sadly several toxic products given to children to "cure" them. 😔

    robrecht , to ActuallyAutistic group
    @robrecht@kind.social avatar

    @actuallyautistic I'm probably inviting trouble by talking about this, but I kinda feel like I owe it to myself at least to say this:

    I used to be unconditionally supportive of people self-diagnosing.

    These days I'm kinda... Less so.

    And the reason for that is the pandemic.

    Before I continue, I want to emphasise that I will -never- tell anyone that what they've concluded about themselves is wrong.

    And I don't want to dismiss how anyone feels.

    (1/?)

    adelinej ,
    @adelinej@thecanadian.social avatar

    @robrecht. This 10 minutes video is for you. ⬇️⬇️⬇️

    “Autism Self diagnosis is invalid!? Autism is the new Fad!? Everybody wants to be Autistic! Um, NO. Self-Diagnosis is valid. It is a RIGHT. Until someone has chosen you as their provider and is getting your professional autism OPINION, their self-diagnosis is none of your business."

    @actuallyautistic

    https://www.tiktok.com/@jeremyandrewdavis/video/7296519377212607790

    adelinej ,
    @adelinej@thecanadian.social avatar

    @robrecht @VeeRat @actuallyautistic @servelan

    Do you realize that you are not the only one with an anxiety disorder in the community and that your thread is gaslighting those of us who can’t access official diagnosis?

    adelinej , to Random stuff
    @adelinej@thecanadian.social avatar

    J’aime beaucoup cet article et vous ?

    « Autisme : passer un appel téléphonique, c’est plus complexe qu’il n’y paraît »

    https://leblogdepetiteloutre.com/2021/11/26/autisme-et-telephone-difficile/#:~:text=L%27hypersensibilité%20auditive%20associée%20à,ou%20à%20une%20surcharge%20sensorielle.

    ratcatcher , to ActuallyAutistic group
    @ratcatcher@c.im avatar

    Periodic reminder that the @actuallyautistic group and hashtag are intended for discussion BETWEEN AND AMONGST people who are autistic (diagnosed or self-diagnosed) or think they may be.

    If you are not autistic, by all means read what is posted, but please respect this as an autistic space and do not post here.

    There are plenty of other groups and hashtags under which more general discussion of can take place and can include professionals, academics, non-autistic parents of autistic children and those with a general interest in the subject.

    But the second - often overlooked - issue is this:

    My fellow autists - when someone who is clearly not themselves autistic does post to the group, PLEASE, PLEASE do not engage. I know it's hard, but ultimately it just subverts, dilutes and prolongs discussions which can rapidly become unhelpful and adversarial.

    adelinej ,
    @adelinej@thecanadian.social avatar

    @ratcatcher @actuallyautistic

    I plead guilty 😔 but I'm working on it. And yes it's hard to not engage with these "I'm not autistic but I know better than you".

    I'm always wondering if they do the same with a wheelchair user or someone legally blind? Do they tell what they should do/react/live etc.

    It's a rethorical question, it's just a vent. Thank you for this periodic needed reminder!

    tine_schreibt , to ActuallyAutistic group
    @tine_schreibt@literatur.social avatar

    @actuallyautistic

    This explains so much o.o

    Does anybody else here feel the same?

    https://neuroclastic.com/the-identity-theory-of-autism-how-autistic-identity-is-experienced-differently/

    adelinej ,
    @adelinej@thecanadian.social avatar

    @tine_schreibt @actuallyautistic I guess as an autistic my first answer to this question would be “I’m me”, or "I’m the sum of all the experiences I went through. I’m in constant evolution and since I know that I’m autistic, I know now why I try to adapt and to fit in a world not made for me, why it is exhausting to live a world in which I feel constantly assaulted by noise, light, smell, social expectations and rules, etc." If you are autistic you know what I mean.

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