pathfinder

yourautisticlife , 1 day ago to ActuallyAutistic group

@actuallyautistic

I think the evidence is mounting that in some circumstances I can be rather slow to process emotions.

Sometimes it is not until the day after something happened that I get angry. During this "something" I keep a placid demeanor. This demeanor is not a strategy or a conscious decision.

Then, the next day, I realize how this very thing gives rise to emotions, often anger.

I'm wondering if it relates to alexithymia. I'm not confused about what I feel, but the feeling may get delayed.

Or maybe it is a combination of:

• people pleasing,
• autistic inertia,
• alexithymia

Just thinking out lout about one of my characteristics here.

#ActuallyAutistic

yourautisticlife , 2 days ago to ActuallyAutistic group

@actuallyautistic

You're gonna laugh.

You're gonna cry.

Well, maybe not.

I've got myself some Sony WH-1000XM4 noise-canceling headphones, fully expecting that I'd be returning them.

Haha....

I don't think I'll be returning them.

They are definitely a superior pair of headphones to my Anker Life Q30 Hybrid.

They block more of the outside noise. They also have more features than the Anker.

I have more tests to run before a final verdict.

#ActuallyAutistic

arcana , 2 days ago to ActuallyAutistic group

#ActuallyAutistic @actuallyautistic

it sucks having an unpopular opinion on the internet because i just assume everyone would hate me if they know

unpopular as in, if there's some kind of controversial topic with two sides, my opinion would draw ire from each of those sides

this is a common thing for me to experience because i'm autistic and i think about things differently than most other people, including other autists (we're obviously not a monolith!)

i think this is a very social-media problem, even on fedi where controversial content isn't pushed by an algorithm, because i think clout-chasing and virtue-signaling still influence overall community attitudes. unfortunately, due to various factors, social-media is one of the few options available for me to socialize at all right now

it gets very, very lonely to see people i might otherwise want to get to know clearly indicating that i need to mask up and pretend to agree, otherwise they'll bite my head off

at first it feels like it's not worth sharing those opinions and risking the drama-- and then it feels like it's not worth getting to know people in the first place

btaroli , 2 days ago to ActuallyAutistic group

Today. Was. Just. Too. Much.

Endless work meetings. Slack. Interruptions. HOA Committee Texts. School meetings. School district meetings. Music lesson.

At some point at about 3pm I just had enough. And when this happens I tend to leave chats. Cancel or ignore messages or meetings.

I have to for my sanity. I have learned that if I push on I truly burn out and am not useful for anyone.

Why does our society encourage this???

#ActuallyAutistic #ADHD #AuDHD @actuallyautistic

calofost , 3 days ago to ActuallyAutistic group

I love sharing my struggles here and getting support. This community is so wholesome. I am in the mood for some positivity! What are good things my @actuallyautistic neuropeers are thankful for today? #autisticadult

Susan60 , 5 days ago to ActuallyAutistic group

I nearly didn’t listen to this episode, because I’ve never had an eating disorder, but it’s almost more about identity & addiction & autonomy than eating disorders, and is fascinating as a result.
@actuallyautistic #actuallyautistic

https://podcasts.apple.com/au/podcast/divergent-conversations/id1662009631?i=1000655158496

pathfinder , 5 days ago to ActuallyAutistic group

@actuallyautistic

I've just finished watching the first series of "A kind of spark" on BBC iPlayer. Although, this is not about this excellent show. Rather, it's about the struggle I had with watching it and why it took me two attempts to get through it.

The fact is, that found it quite triggering. Now I know it's about, and probably made for, teenagers and the struggles they go through at school and especially being autistic and at school. And even though school was a very long time ago for me and in another age of man. I still couldn't help comparing it to my own experiences and not just in school, but throughout my life, and how much similarity I could see. Not, in the details, obviously, but in the way I would constantly run afoul of people, or somehow be on their wrong side of someone, even before we'd properly met. The sheer pettiness of some of it and the hurt it so often caused me, as much by my not understanding it, as by the unfairness of it. Of how many toes I'd stood on, without meaning to, or even knowing I'd done it and how much of my life I'd actually spent bewildered and upset by the situations I would find myself in and the actions I couldn't understand of the people around me.

Of course, no-one, least of all myself, knew that I was autistic back then, because that would probably have made it much worse. But knowing I am autistic now, at least gives me an understanding of why some people might have reacted this way. How, in some ways, at least, I've never really behaved in the ways that others might find appropriate, to their position, or status, or sense of worth. How socially blundering my way through life, of necessity, includes many toes I could step on and people who could be offended.

But, of course, understanding this now, doesn't really ease the memories. Neither of the pain I did cause, without meaning to, or the pain I received. It doesn't make the life I've had easier, only easier to understand.

And that, in a sense, is what this show made me have to face. That no matter how privileged my life has been. How much easier I've had it, compared to so, so, many others. It's never been easy. There have only been moments, brief and sometimes, admittedly, not so brief periods where my life seemed to make sense and I felt, if not entirely in control, at least in somewhat of a comfort zone. That I was OK and that I could just get on with doing things my way and just being myself. Not without cost, of course, normally in hard, unremitting, work and effort. In often struggling with feelings of guilt and shame about how selfish I was having to be. Because, that was what carving out my own world felt like. Not necessary, or even justified, but selfish and almost petty of me.

And then, of course, there would always be something that would intrude from the outside world. As often, as not, something petty and officious that would dump me back into the turmoil and uncertainty. Because, you can never really isolate yourself from the world, as much as some of us would love to. And so much of this world really isn't made for us. It will always be hard and there will always be those who delight in making it harder. Those who are truly petty and selfish, in the ways that we aren't, and others who will try to use that hate to benefit themselves. It's why carving out our safe spaces will always be difficult, but also, so very necessary.

#Autism
#ActuallyAutistic

Tim_McTuffty , 6 days ago to ActuallyAutistic group

Diary of an ASD Squirrel. Day 198 , Monday 13/05/2024

Up early for some reason beyond this simple squirrels reasoning.
Tidied up after herself, did my chores & went for a walk in the warm early summer sunshine !

I cannot seem to find the impetus to get stuff done, I work best to a deadline & the only person pushing me at the moment is me, which would be fine but I have minimal motivation levels at the moment.

I’m wondering from day to day like a leaf blowing in the breeze, no direction, no purpose.
At least the days are warm now & a lot sunnier, saving energy is easier , my lone mission to drag our energy bills down is less onerous in the summer.

Final Thoughts.

I suspect that I am going through a depressive episode, I hope I come through to the other side soon.

Thank you to all those who are helping me on this journey, in a myriad different ways. I am thankful to each & every one of you! 🫂 🫶🐿️🖖

@actuallyautistic
#TimsASDjourney #ActuallyAutistic #Neurospicy #TheMammutMoves

KitMuse , 6 days ago to ActuallyAutistic group

I know people with estrogen have said their ADHD gets worse during perimenopause/menopause, but I'm wondering if people with testosterone 50+ also notice their Autism/ADHD symptoms getting worse. Especially more "inattentive"/stuck in their thoughts.

I feel like we really need more research on all of this.

#ActuallyAutistic #ADHD #AuDHD @actuallyautistic @neurodiversity #neurodivergent

LehtoriTuomo , 6 days ago to ActuallyAutistic group

Sitting in the bus after a day at work. Feeling tired. The meeting that ended the day dragged on and I stopped even trying to follow the discussion. I haven't listened to music in a bus in ages but now I find myself thinking that maybe I should buy a set of noise-canceling headphones.

The bus is hissing loudly, there are conversations that I can't hear which somehow makes them even more annoying. On top of all I'm sitting under a loudspeaker that plays the stop signal in a very loud tone. Shit, it rang again and startled me. Why does it have to be that loud?

Fortunately I'm not too far from home but still.

#ActuallyAutistic @actuallyautistic

CynAq , 7 days ago to ActuallyAutistic group

#ActuallyAutistic @actuallyautistic

Melt down or freeze up, that is the question.

mariyadelano , 7 days ago to ActuallyAutistic group

Question for fellow @actuallyautistic and @actuallyadhd neurodivergent folks:

How do you explain your ideas to neurotypicals?

I constantly struggle because my brain has made connections that are not obvious to others, and when I try to guide them through my thinking I confuse them with details or by skipping explanations that seem obvious to me but completely surprising to anyone else.

Frameworks, links, anything is appreciated!

onecreativecat , 7 days ago to ActuallyAutistic group

Pff I got everything wrong tonight, mistaking Husband's enquiring/puzzled look for an annoyed one, and I got angry 😔.
It doesn't last, and he does not resent me once I explained but it sucks.
#ActuallyAutistic
@actuallyautistic

lifewithtrees , 8 days ago to ActuallyAutistic group

“What do you want to do 5 years from now?”

🤔

😬

🤯

I am having a difficult time visioning 5 years from now, what I want to do and then how to get there.

Some of this is due to the chaos of the last few years, but I also think it could be a challenge due to #AuDHD

Also I am 42 so midlife stuff?

That all said, how do you vision 5 years from now?

@actuallyadhd @actuallyautistic

Zumbador , 8 days ago to ActuallyAutistic group

@actuallyautistic

I have half formed thoughts about autism and externality. Not sure if "externality" is the right word?

I seem to be much more entangled with objects and my environment than most people, and I think that's a autistic (and ADHD?) thing.

Having to use notes and lists to remember things and organise my thinking, as if my memory resides as much on paper and digitally, as it does in my brain.

Having strong empathy for non-living things, as if harming them is harming myself.

My relationship with my home: I don't really feel safe and relaxed anywhere else, and I strongly dislike other people (except for my husband) being in my space. As if my space is an extension of myself.

All of these things feel like different manifestations of the boundaries between myself and everything else being blurred.

#ActuallyAutistic

Uair , 9 days ago to ActuallyAutistic group

@actuallyautistic

How are you with animals?

I tend to throw off the wrong vibe for people, but get along with even the iffy animals. Dogs that don't like most people warm to me.

Just wondering how much of that is autism and how much me. My dad hates animals.

dyani , 10 days ago to ActuallyAutistic group

Yesterday was my 1 year AuDHD anniversary!

1 year since the most life-changing realization ever. My resting heart rate dropped by ~10 points after I figured it out.

Knowing this about myself has given me so much peace & confidence. It's given me even more compassion for myself and others. I advocate for my needs now, and I have better boundaries.

Every day I marvel at how amazing we ND folks are, and how much we bring to the world.

I so appreciate this community!

@actuallyautistic

LehtoriTuomo , 10 days ago to ActuallyAutistic group

One reason why it took me so long to self-diagnose autism is that I thought I don't stim. In fact, once I learned that I do stim, my self-diagnosis process kicked in. That was the first time I said to myself that I might actually be autistic.

The reason for this misunderstanding was that I thought stimming is stereotypical, very repetitive, compulsory movement. I guess this misunderstanding is quite common.

I've since learned that stimming, short for self-stimulatory behavior, is basically stimulating one's sensory system in certain ways. It may be a way to soothe oneself, help to focus in overwhelming situations by feeding one's brain predictable sensory input, a way to express joy, or simply something that feels nice. Movements are part of it but any sense can be used.

When googling the term, there are mentions that also neurotypicals stim but that when diagnosing autism, stimming is somehow different -- only socially unacceptable stims are "real" stims. Bah.

I've started paying attention to how and when I stim, and collect a list of stims I do. I've noticed all types of stimming behavior (soothing, focusing, joy, fun). I do it more than before -- or maybe I just notice it more often. I've noticed that I love moving my body parts, especially to music. I also love different textures.

#ActuallyAutistic #stimming @actuallyautistic

Susan60 , 11 days ago to ActuallyAutistic group

I’ve always been a “coper”, constantly trying to find ways to manage, to do what “needs” to be done etc, except for those periods when I was burnt out. I remember when feeling overwhelmed years ago, a counsellor helped me to see that it was possible to achieve everything that I needed to do over the next few days, as a single mum, students, part time worker. Which was great in the short term…

We got home from several days in Sydney yesterday. Monday & Tuesday we went out after spending the weekend with family, but kept it low key. Today I was supposed to head out for a counselling appointment, treating myself to a tram trip to a lovely neighbourhood & a cafe lunch afterwards. Instead she’s going to send me a link for an online session. And I might have a nap afterwards. I’m learning. Slowly.
@actuallyautistic

pathfinder , 11 days ago to ActuallyAutistic group

@actuallyautistic
@actuallyadhd

After joining a post by Niamh Garvey (hopefully a successful link to it below) about whether she had adhd as well as autism, I have spent the last couple of days contemplating this idea for myself as well.

I am still not entirely convinced, but I am beginning to suspect that I might well be in this situation as well. After watching a number of YouTube videos from those with both autism and adhd and reading up on adhd, I can see a number of things that point on that direction certainly, although I'm not entirely convinced.

I have always been aware of the near overwhelming urge to either interrupt people, because there is something I want to say and if I don't then, then I know there is a more than a reasonable chance that I will forget what it was. I also have a tendency to want to finish people's sentences. Both of these things though I have taught myself to resist. Even though I feel a great deal of discomfort doing so. I am also more than aware that I can forget what I was saying, or thinking, halfway through a sentence. That digging through the trash to find the package with the instructions on, that I only just threw away after reading, is not uncommon. As is failing completely to understand or remember the instructions someone just gave me.

But then, my short term (working) memory is basically non-existent. But, I'm also aware that this is a fairly common problem for autistics and even before I realised I was autistic, I built up systems to help myself deal with this. As well as with my general forgetfulness. Lists, memory aids, even making the route out of my flat a trip hazard to make sure I don't forget to take something with me. Also, I live alone and essentially there is a place for everything and everything has its place. Not foolproof and I have lost things in a very small flat that I still haven't found. But generally speaking effective.

I struggle to start tasks, especially tasks that I have no real interest, or desire to do. Being interested in something has always been my main motivator. But eventually, I can normally force myself and work my way through things, especially if I know they are necessary. Knowing I have this problem is also why I hate leaving things to the last moment. I know that I am more than capable of doing that if I allow myself, but also that the stress from doing so is nearly overwhelming, even if it can be motivational. As is the stress of clutter. Not the organised clutter that is my flat, where I know where everything is, as in somewhere in that pile over there, but the clutter that builds up eventually and begins to feel as if it is out of control.

Novelty is a factor in my life. Or, boredom, rather. Because sooner, although far more likely later, I will grow bored with routines, or things like safe foods, and need to change them. Many of my interests also seem to suffer from a similar threshold. A certain point where I lose interest and no longer feel any need to maintain them, even though this might make me feel guilty about giving up on them. In fact, I hate boredom and I have always needed a certain amount of new things to watch, or discover and to be actively doing stuff, if only in my head. And whilst I have never thought of myself as being particularly spontaneous or impulsive. I am, within certain limits of self-control. There is a rationality that often has to be appeased that gives me a sense of control. I have also taken stupid risks and great risks. But rarely beyond what I knew was necessary, or to my mind, at least, controlled to a point.

I can be easily distracted, by random thoughts or by, (well obviously not squirrels, I mean who would be? but, oh, oh, there's a butterfly) things. But not always to the point that I'm not at least marginally still aware of what I should be paying attention to. Letting myself wander whilst maintaining at least a marginal awareness is an old trick of mine. I have always been a fidgeter, but that's also how I maintained concentration. Feeling the overwhelming need to move, has always seemed to me to be anxiety driven, or is the way I focus and think. In fact, movement for me has always been as much about settling and regulating myself, as it has been compulsive.

As I said, there are certain things that seem to fit, even if they also seem to have been effected and possibly modified by my autism. I would love to hear your thoughts.

https://beige.party/@niamhgarvey@mastodon.ie/112390279791932822#

aspiedan , 12 days ago to Random stuff

Feeling like a walking black hole today :octo_sad: Things are just too much and going wrong. I can't see past all the negative and want to curl in a ball and hide, but can't as at work and then home to the kids. Feeling out of touch and depth rn :ir: :blobcatverysad:

pathfinder , 13 days ago to ActuallyAutistic group

@actuallyautistic

Much to my shock I realised that I could be autistic when I was 53, roughly 7 years ago. And it was a shock, even though I suspect a very small, well hidden and very much ignored part of me, might have suspected. No one told me about it, or suggested that it might be the case. I did not see myself in relatives, the way so many of us do. I just happened to come across an autism test online and for no particular reason, took it.

It was that, that started me on my path to realising and finally accepting the truth that I was autistic. But, looking back, I sometimes find it hard to understand how I didn't know earlier. So much of my life now, just screams autism at me. But even ignoring the horribly ableist and medieval view I had of what autism was, the main reason why I didn't was probably because I could mask, both from myself and others, so well.

It was, I realise now, a life lived in denial. A denial of how much things bothered me, how much effort I had to put into things. Even a denial of the things I knew I couldn't do. Because this is the thing about appearing to mask so well, for so long. It is, in a sense, a lie. I couldn't mask well, if at all. Not all the time. Not in all situations or circumstances. There were things I just couldn't cope with, or even begin to deal with. But the trick was, that I either knew about them, or learnt the hard way about them and then I could manage my life to avoid them. Because they were things I could live without, without affecting how I appeared to be coping. Things that didn't affect the way I lived, even if they did affect my sense of worth. Because, how broken did you have to be, not to be able to go to crowded events, like a sports match, or a concert? Or to be able to deal with the socialising of a large gathering, or a family event, without having to hide in the kitchen, or forever outside, or break down in a toilet?

It was all part of how I masked myself from myself. The internal masking, as I like to call it. If I couldn't cope, then I was broken. If I couldn't stand something, then I was too picky, or sensitive, or I simply needed to learn to ignore it. And somehow I did learn. I learnt how to cope with noise and smell and visual overwhelm. I learnt to not let things bother me. To a point at least. There was always a step too far, when I couldn't, or didn't have the energy any more to maintain it. And this did take energy, a lot of it. Something I've only realising now that I don't have the energy to spare to even try it. Or the ability to, in many respects now that I know what I was trying so desperately to hide from.

Because when the truth is known, it's far harder to deny it. It's far harder to live the life where appearing to cope, is as good as coping. Where blaming yourself, is easier than seeing others faults. Where ignoring the pain, makes the pain go away. It's hard to see the mask as a benefit and always a good thing, rather than the shield and tool it always was.

#Autism
#ActuallyAutistic

pathfinder , 17 days ago to ActuallyAutistic group

@actuallyautistic

Autistic brains be stupid. Well, obviously not stupid, they just seem to work, or not work, in mysterious ways.

The main one that has always got me, about mine, is that I have no memory for sound, absolutely none. I can't remember a song, or a sound. I can't remember what my parents sounded like and none of my memories carry, for want of a better word, a soundtrack. I can remember what I was thinking and what others were saying, but not hearing them say it, nor any other sound. I also don't dream in sound, at least as far as I know. All my dreams are silent.

And yet, and it's a big yet. I have an excellent memory for voices and sounds. Like many autistics I have near perfect pitch, at least when I'm hearing others sing, or music playing. Just don't ask me to reproduce it, because I can't. If I meet someone I haven't met for a while, then I will almost certainly not recognise their face, or remember their name, but there is a very good chance that I will recognise them from their voice. I am also very good at detecting accents. Even the slightest hint of one in, say, an actor pretending to be an american, will get me searching Wikipedian to see if I am right about their actual nationality.

So, if I can tell the sound of a Honda CBR engine two blocks away, or a voice, or an accent buried deep, I must have the memories to compare against. And yet... nope.

So, as I said, autistic brains be stupid.

#Autism
#ActuallyAutistic