clarkiestar , to ActuallyAutistic group
@clarkiestar@mas.to avatar

Can anyone recommend a true crime podcast where they actually solve the crime? @actuallyautistic teen is finding it very frustrating. Enjoys true crime - loves the investigative side - but thinks what’s the point if it doesn’t go anywhere. She’d like to listen to one where it comes to a conclusion on who the guilty party is

Tim_McTuffty , to ActuallyAutistic group
@Tim_McTuffty@beige.party avatar

Diary of an ASD Squirrel. Day 194 , Thursday 09/05/2024

Woke to a possibly the best , sunniest day so far this year.

Sorted breakfast & tidied up after herself, then almost in-spite of myself went for a short (2km) walk.
For the first time, in a long time I had a good walk! I was not pushing all the way, a steady pace didn’t wipe me out ! The birds were singing & the sun was warm & bright!
Shame about the dog walkers - I was out a bit later than normal so maybe it was a different crowd, but what an ignorant , arrogant bunch of stuck up … one person responded to my greeting one!
What happened to good manners ? Maybe they are too woke ???
It’s little wonder I don’t do people in the flesh !

My sudden burst of energy persisted thru today , (I hope this isn’t a manic phase, I hate dropping off the end of those !
The kettle was brutally descaled to within an inch of its life & then because the solar panels were maxing out in the sunshine I went wild & gave the washing machine a deep clean. Of course by the time that I had cleaned the powder dispenser & the seals & started the cleaning wash cycle the sun went behind the clouds ! 🙄🤦‍♂️

Hit Fo4 this afternoon sure in the knowledge that I actually achieved something today !
It’s pitiful when you look at it objectively , but in comparison to recently it was a good day.

Cooked beans & scrambled eggs for tea, partially because we had some eggs to use up & partially because I wanted something easy.

Finished the evening watching ‘Masters of the Air’ , same crew that made Band of Brothers - but as with the one they did on the Pacific its not of the same quality as BoB !

Final Thoughts.

I miss companionship sometimes , I’m about as social as a polar bear with shingles but sometimes it would be nice to just be with someone, not worry about masking , not pretend to be fine, not fake enjoyment of another’s pastime.

Hey ho, it is what it is.

Thank you to all those who are helping me on this journey, in a myriad different ways. I am thankful to each & every one of you! 🫂 🫶🐿️🖖

@actuallyautistic

thereaders , to Random stuff
@thereaders@disabled.social avatar

I'm trying to arrange a $93 loan for myself to be paid off Wednesday. It would need to be etransfer so if any Canadians can, help a home out and shoot me a dm!


LehtoriTuomo , to ActuallyAutistic group
@LehtoriTuomo@mementomori.social avatar

One reason why it took me so long to self-diagnose autism is that I thought I don't stim. In fact, once I learned that I do stim, my self-diagnosis process kicked in. That was the first time I said to myself that I might actually be autistic.

The reason for this misunderstanding was that I thought stimming is stereotypical, very repetitive, compulsory movement. I guess this misunderstanding is quite common.

I've since learned that stimming, short for self-stimulatory behavior, is basically stimulating one's sensory system in certain ways. It may be a way to soothe oneself, help to focus in overwhelming situations by feeding one's brain predictable sensory input, a way to express joy, or simply something that feels nice. Movements are part of it but any sense can be used.

When googling the term, there are mentions that also neurotypicals stim but that when diagnosing autism, stimming is somehow different -- only socially unacceptable stims are "real" stims. Bah.

I've started paying attention to how and when I stim, and collect a list of stims I do. I've noticed all types of stimming behavior (soothing, focusing, joy, fun). I do it more than before -- or maybe I just notice it more often. I've noticed that I love moving my body parts, especially to music. I also love different textures.

@actuallyautistic

smote , to A Community Resource for Disability & Accesibility
@smote@mastodon.social avatar

URGENT! please help Tasia with basic necessities and healthcare!

225/$600

paypal: paypal.com/paypalme/ourinsatiabesouls

GFM: https://gofund.me/94da7e76

@mutualaid @mutual_aid

theautisticcoach , to ActuallyAutistic group
@theautisticcoach@neurodifferent.me avatar

What does “unmasking” mean to my comrades?

@actuallyautistic

Tim_McTuffty , to ActuallyAutistic group
@Tim_McTuffty@beige.party avatar

Diary of an ASD Squirrel. Day 193 , Wednesday 08/05/2024

Up early as Mrs S. was back in the office today.

It was a lovely sunny morning so I had a little more energy today so cleaned the vacuum cleaner filters & the fluffy roller on the front - drying it is extremely suggestive. 😆

Cleaned the coffee machine , which has been needing a deep clean for a week, so that was a good job done - dismantling the brewing unit & regreasing it is a pain in the butt , but it does make it work better !

Hit Fo4 again this afternoon , then just for a change watched Fallout the series with Mrs S. while we ate our tea.

Final Thoughts.

Another quiet day but a bit more energy & motivation which was nice. The PF in my foot seems to be fading slowly which is a plus !

Thank you to all those who are helping me on this journey, in a myriad different ways. I am thankful to each & every one of you! 🫂 🫶🐿️🖖

@actuallyautistic

ashleyspencer , to ActuallyAutistic group
@ashleyspencer@autistics.life avatar

Any autistic artists who are also book lovers want to create some t-shirt designs for me?

Book loving and writing themes.

It’s for Autistic Bookshop.

30% from the authors book sales alone is nowhere near enough to break even (need 500 books sold a month), so added merch.

Example below.


@actuallyautistic

All I need is my cat and a good book t-shirt in a pink color
I am always writing a story in my head t-shirt in a navy color

pinkpenguin , to ActuallyAutistic group
@pinkpenguin@sakurajima.moe avatar

the autistic self help book i'm listening to just told me to quit my overpaid finance job to pursue my dream of a second hand hello kitty store

i have never managed to hold down a single job for longer than 18 months, and none of those ever paid me more than 15 bucks an hour

i wanna punch somebody in the face

@actuallyautistic

thereaders , to mutualaid group
@thereaders@disabled.social avatar

$50! I know that's a lot of money but that's what I've been trying to come up with to make it to my next disability payment.

Please! $5 from 10 people is all I need

https://www.paypal.com/paypalme/ourinsatiabesouls


@mutualaid @mutual_aid

JeremyMallin , to ActuallyAutistic group
@JeremyMallin@autistics.life avatar

Does anyone ever consider learning sign language not because they can't speak, but just because sometimes they don't want to? Or don't feel up to it?
@actuallyautistic

johnnyprofane1 , to ActuallyAutistic group
@johnnyprofane1@neurodifferent.me avatar

Credible allegations of unchecked abuse against students at high-cost therapeutic school...

Shrub Oak reports to no oversight body. Charges up to $500K/yr.

Horrific reports from parents.

@actuallyautistic
@actuallyautistics

https://www.propublica.org/article/shrub-oak-school-autism-new-york-education-oversight

Troggie , to Random stuff
@Troggie@mendeddrum.org avatar

Do any other , especially also folks get that nagging worry when you didn’t communicate well enough to a Dr?

After a Dr told me yesterday I didn’t fit criteria for something & I looked it up and thought actually I did, I commented to D I hadn’t even been asked one of the criteria.

D said he did ask but it seems he phrased it in a way that made me assume he meant something specific that wasn’t happening.

Hopefully it wasn’t important…

Troggie OP ,
@Troggie@mendeddrum.org avatar

He also asked if I get dry eyes and mouth. I said my eyes have always been dry to the point I can’t wear contacts. I also have a really dry mouth but he’d already moved on to another question and I didn’t want to interrupt.

Again, hopefully not that important right? 😐

CynAq ,
@CynAq@neurodifferent.me avatar

@Troggie I’m always weary of people in positions of authority who steamroll you in information exchanges.

If a doctor asks me questions and doesn’t give any information back as to what my answers might mean medically, I always think that they have a preconceived decision of what condition my health is in and are trying to get the correct paperwork done to support their decision. Doesn’t do anything for my confidence in them.

I don’t want to go into NT vs Autistic in this regard because I talked to many neurotypical but skeptically minded people who can actually base their decisions on available data but many people just go by their gut feelings and try to fit the world to their ideas. We’re used to politicians and bureaucrats behaving that way but we don’t expect that from doctors. Many of them absolutely do that all the time.

Sorry for the semi rant 😅


@actuallyautistic

thereaders , to mutualaid group
@thereaders@disabled.social avatar
Tim_McTuffty , to ActuallyAutistic group
@Tim_McTuffty@beige.party avatar

Diary of an ASD Squirrel. Day 192 , Tuesday 07/05/2024

Up early as Mrs S. was back in work - she has me so well trained that I didn’t even need the alarm - Pavlovian responses kicked in.

It has been a quiet day, I have lacked both physical & mental energy. That said , bathroom has been cleaned & various minor chores dealt with.

MiL is still in hospital, still waiting for her CT.

Was good tonight & got back on the diet , the plan was soup with a bread roll, but for whatever reason the bread rolls were 3 days out of date & going mouldy , so a stricter diet that at first intended.

Final Thoughts.

There is a certain irony in the fact that upon hearing my MiL was ill in hospital my side of the family have been in more contact with me than in the whole of the year so far - but my role is simply as a provider of updates.

Thank you to all those who are helping me on this journey, in a myriad different ways. I am thankful to each & every one of you! 🫂 🫶🐿️🖖

@actuallyautistic

theautisticcoach , to ActuallyAutistic group
@theautisticcoach@neurodifferent.me avatar

When an human shares their life and thoughts with you, it’s because they like you, feel safe with you, trust you.

If you use that opportunity to make them feel small, refer to them as self-centered, or reject them, you really don’t know the first thing ✔️

@actuallyautistic

everyday_human , to ActuallyAutistic group
@everyday_human@beige.party avatar

I totally forgot it was Monday but also. I just remembered it was Monday. So it’s been Monday twice not Monday once 2/3. Not bad



@actuallyautistic

thereaders , to mutualaid group
@thereaders@disabled.social avatar
pathfinder , to ActuallyAutistic group
@pathfinder@beige.party avatar

@actuallyautistic

Much to my shock I realised that I could be autistic when I was 53, roughly 7 years ago. And it was a shock, even though I suspect a very small, well hidden and very much ignored part of me, might have suspected. No one told me about it, or suggested that it might be the case. I did not see myself in relatives, the way so many of us do. I just happened to come across an autism test online and for no particular reason, took it.

It was that, that started me on my path to realising and finally accepting the truth that I was autistic. But, looking back, I sometimes find it hard to understand how I didn't know earlier. So much of my life now, just screams autism at me. But even ignoring the horribly ableist and medieval view I had of what autism was, the main reason why I didn't was probably because I could mask, both from myself and others, so well.

It was, I realise now, a life lived in denial. A denial of how much things bothered me, how much effort I had to put into things. Even a denial of the things I knew I couldn't do. Because this is the thing about appearing to mask so well, for so long. It is, in a sense, a lie. I couldn't mask well, if at all. Not all the time. Not in all situations or circumstances. There were things I just couldn't cope with, or even begin to deal with. But the trick was, that I either knew about them, or learnt the hard way about them and then I could manage my life to avoid them. Because they were things I could live without, without affecting how I appeared to be coping. Things that didn't affect the way I lived, even if they did affect my sense of worth. Because, how broken did you have to be, not to be able to go to crowded events, like a sports match, or a concert? Or to be able to deal with the socialising of a large gathering, or a family event, without having to hide in the kitchen, or forever outside, or break down in a toilet?

It was all part of how I masked myself from myself. The internal masking, as I like to call it. If I couldn't cope, then I was broken. If I couldn't stand something, then I was too picky, or sensitive, or I simply needed to learn to ignore it. And somehow I did learn. I learnt how to cope with noise and smell and visual overwhelm. I learnt to not let things bother me. To a point at least. There was always a step too far, when I couldn't, or didn't have the energy any more to maintain it. And this did take energy, a lot of it. Something I've only realising now that I don't have the energy to spare to even try it. Or the ability to, in many respects now that I know what I was trying so desperately to hide from.

Because when the truth is known, it's far harder to deny it. It's far harder to live the life where appearing to cope, is as good as coping. Where blaming yourself, is easier than seeing others faults. Where ignoring the pain, makes the pain go away. It's hard to see the mask as a benefit and always a good thing, rather than the shield and tool it always was.


Tim_McTuffty , to ActuallyAutistic group
@Tim_McTuffty@beige.party avatar

Diary of an ASD Squirrel. Day 191 , Monday 06/05/2024

So the plan for this morning was, since it was a bank holiday , was a nice long lay in …
I forgot to change my meds reminders 🙄🤦‍♂️

My MiL is still in hospital , waiting for a CT scan, currently no eta , ‘later this week ‘ to quote a spurge in the know 🙄🤦‍♂️

Pottered thru the day , a bit of Fo4 , a bit of reading, a bit of TV.
EDFitis is still a thing.

Watching ‘Argyle’ so far so ‘hmmmm’
Nice plot twist

Final Thoughts.

Back to ‘normal’ tomorrow, this year is slipping past at an astonishing rate of knots !!

Thank you to all those who are helping me on this journey, in a myriad different ways. I am thankful to each & every one of you! 🫂 🫶🐿️🖖

@actuallyautistic
Diary of an ASD Squirrel. Day 191 , Monday 06/05/2024

So the plan for this morning was, since it was a bank holiday , was a nice long lay in …
I forgot to change my meds reminders 🙄🤦‍♂️

My MiL is still in hospital , waiting for a CT scan, currently no eta , ‘later this week ‘ to quote a spurge in the know 🙄🤦‍♂️

Pottered thru the day , a bit of Fo4 , a bit of reading, a bit of TV.
EDFitis is still a thing.

Watching ‘Argyle’ so far so ‘hmmmm’
Nice plot twist

Final Thoughts.

Back to ‘normal’ tomorrow, this year is slipping past at an astonishing rate of knots !!

Thank you to all those who are helping me on this journey, in a myriad different ways. I am thankful to each & every one of you! 🫂 🫶🐿️🖖

@actuallyautistic

adelinej , to Random stuff
@adelinej@thecanadian.social avatar
ALT
  • Reply
  • Loading...
  • + KaCi
    ashleyspencer , to Random stuff
    @ashleyspencer@autistics.life avatar

    I read a post elsewhere where someone said ND people can be brilliant entrepreneurs, scientists, etc and function well in society. And if someone struggles to function means they are disordered and have a developmental disability. Said it as if its either or.

    Which is very strange because I’m an entrepreneur and I don’t function well in society.

    Am I supposed to be a “brilliant entrepreneur” only and not struggle to function?

    And since I struggle it means I’m developmentally disabled? What?

    ashleyspencer OP ,
    @ashleyspencer@autistics.life avatar

    When people talk about how we should give neurodiverse people a chance, the example of we might be “brilliant” is always used.

    Why do we have to be exceptional beyond a neurotypical to be taken seriously?

    Why can’t we just be good enough at what we do and be taken seriously?

    BZBrainz , to bookstodon group
    @BZBrainz@mastodonbooks.net avatar

    @bookstodon @bookwyrm
    If you read large print or dyslexic font paperback books do you prefer this to be indicated on the cover (say on a banner at the top) to help you identify the accommodation?

    I compiled a quick poll based on different perspectives I've read.

    ➡️ Please consider sharing to help me reach more readers.

    BZBrainz OP ,
    @BZBrainz@mastodonbooks.net avatar

    @bookstodon many months ago I received feedback that some readers disliked how I labeled my large-font edition of Late Identified workbook. So I could do better, I asked.

    The majority that participated reported they wanted the accommodation labeled on their paperback in a visible way.

    “Large Font Edition” or “Dyslexic Font Edition”

    When I asked where, most said on the spine.

  • All
  • Subscribed
  • Moderated
  • Favorites
  • supersentai
  • WatchParties
  • Rutgers
  • jeremy
  • Lexington
  • cragsand
  • mead
  • RetroGamingNetwork
  • loren
  • steinbach
  • xyz
  • PowerRangers
  • AnarchoCapitalism
  • kamenrider
  • Mordhau
  • WarhammerFantasy
  • itdept
  • AgeRegression
  • mauerstrassenwetten
  • MidnightClan
  • space_engine
  • learnviet
  • bjj
  • Teensy
  • khanate
  • electropalaeography
  • neondivide
  • fandic
  • All magazines